This part of my journey has been very new to me and probably to a lot of you. About two months ago, I was diagnosed with Lyme Disease. (Click here to find out more general information on Lyme.) First off, I want to say that I’m not writing this as a pity party for myself, but to educate those around me to what I’ve been facing. The Lord has been so good to me during this process, and even though I’ve been facing physical and mental struggles, He has been present through it all.
My last post was about anxiety and depression. My world was opened up four months ago to a huge battle that was going on inside my mind. One that I couldn’t seem to express to others or come to believe for myself. I know these are true struggles for many people, but can sometimes be overlooked by the Christian community as a lack of trust in the Lord. Four months ago, I was not me. I was attacked and broken by my own brain. I knew the Lord was there and active, but there was a huge disconnect between what I knew and how I felt.
As I was at home and struggling deeply with these two things, I was finally getting better and recovering. One day in November, after Thanksgiving, there was a day where I actually felt like myself. I felt like Hannah. I had energy, excitement, and hope bursting out of me for the first time in a long time.
I was so excited, and I decided to take this time I was off from school to be purposeful. I chose to reach out to my high school basketball coach and ask if I could help out with the varsity team there. Keep in mind, I know like 5 things about basketball and one of them is how to foul out consistently. Needless to say, I wasn’t going to be much of a help to the team or coaching staff. However, they accepted me with open arms.
Finally, I was able to do something with purpose. I was pretty anxious about going back to high school since I hadn’t been there for so long. Who would I see? What questions would they ask? It’s embarrassing having to take time off of school, so what would people think?
That day, thankfully, I was greeted with friendly and judgment-free faces. Although I had clear supporters, it was still extremely difficult to admit what was truly going on in my life. This was the first day I had talked about my anxiety and depression without crying. A huge step towards healing.
The plan was to run some drills with the girls as an extra player because small Christian schools seem to have a hard time just getting 10 girls to play. Anyways, I was rearing to go. It felt good to put on my basketball shoes that I hadn’t worn in quite some time. I thought since I was a collegiate soccer player, I would be able to hang with a few high school athletes even though I’d been down and out for almost two months. I couldn’t have been THAT out of shape, right?
Well, I was proven wrong. In fact, I participated in 3v2v1, according to my Fitbit, for exactly 8 minutes. Yes, I didn’t mistype. Eight short minutes. During these 8 minutes, I managed to fall on my butt pretty hard. I clearly was keeping up with my high school reputation of being clumsy. Now, I was just a clumsy college girl. Go me! Also, I didn’t take my inhaler, so I couldn’t breathe, AND I was dehydrated and thought I was going to pass out. I did great this day. Despite the struggle, I planned on coming back the next day for practice.
The next day, I woke up to my alarm as normal, but I felt like I got hit by a bus, or two, or twelve. At this point my body was a little sore, but not as bad as I thought it was going to be. I started my day normally, and within an hour of being awake, I couldn’t keep my eyes open. This was after getting about 10 hours of sleep the night before. I fell asleep on my favorite couch (I love couches for naps. There is nothing better.) for about 2 hours. I woke up from this nap and still felt beat.
Now I know at this point you’re probably thinking “You slept too much, that’s the problem” or “Dang I wish I could sleep for 12 hours a day.” I wish both of those statements could be true. Day after day, I felt muscle aches and soreness throughout my body along with fatigue that seemed impossible to cure. I couldn’t sleep right even though I slept for nearly 17 or 18 hours a day. I was still exhausted, and my brain function was equivalent to a pile of mush. I couldn’t think, read, or write properly. I was literally a couch potato, but not by choice.
This next part is gross, but I think it illustrates the pain and struggle of how hard these past months have been for me. I’ve realized that I took showers for granted before. Now, they were difficult for me. I don’t remember exactly how long, but I most likely went a week or so without showering because it took that much out of me. Even then, some days, I had to sit on a stool to make it through.
While experiencing all of the physical, mental, and spiritual struggles, I had absolutely no idea what was truly going on inside me. I’m so grateful for my mom, who never stopped trying to find a doctor to help me.
Through the Lord’s provision and timing, she was able to get into contact with a Lyme Literate Practice. Thankfully, an appointment was set up for me within two weeks. Typically, it could take four months to get an appointment. While my mom and I thought it could be Lyme disease, weren’t sure because I had never tested positive for it before even though I had experienced similar symptoms several times before.
I met with the Lyme Literate Doctor on January 2nd. Happy New Year to me! I was finally going to get answers about what had been going on in my body. He was everything I could have ever asked for in a doctor. He believed me. He listened to me. He genuinely wanted to make me feel better and to be able to live life fully. Without blood tests being done, he was certain I had Lyme disease based on my symptoms and our hour long conversation.
Fortunately, he decided to put me on antibiotics to start killing the bacteria inside me as soon as possible. Along with the antibiotics, I was given a list of natural supplements to take daily, and I was asked to stay on a gluten-free and dairy-free diet until my next appointment. I did what was asked of me, and began to feel very small positive changes inside of me. Nothing that anyone else could see, but only something I could feel.
Three weeks later was my check up appointment to go over the results of my 20 test tubes of blood that were taken. I had no idea what the results were going to be. I discovered I have Lyme disease and Bartonella, which is another tick born co-infection that more specifically affects the joints.
In addition to these diagnoses, the blood tests revealed the damage the disease has done to other systems of my body. Some parts impacted significantly are my glucose level, hormones, and sensitivities to wheat, dairy, and egg. I am also at risk of developing rheumatoid arthritis at a young age.
After discussing the results, I was put on an additional antibiotic for Bartonella and many more natural supplements. I was told to go on an even stricter diet called Auto-Immune Paleo. In summary, this means I can eat most vegetables, all fruit, and meat.
Currently, I am in a phase of extreme recovery and taking every day as it comes. I truly don’t know how I’m going to feel each day. I am trying my best to follow the doctor’s orders, which includes resting, resting, and more resting, which is the hardest thing I’ve had to do since I am typically an extremely active and busy person. I’m thankful that I have seen so many positive changes. For example, I have been able to stop taking my anxiety medicine, and I am working to stop my depression medication. I truly believe Jesus is healing me from the inside out and using this experience to guide me closer to Him.
Below is a picture explaining exactly how I feel on a day to day basis and how I will most likely feel for the rest of my life. It is a quick explanation of my energy level and that there is only a certain amount of it I have each day. If I go over my allotted energy, I will be impacted for the days to come. It is important for me to stay disciplined and conserve energy when I can. This is from But You Don’t Look Sick, which is a website that discusses various chronic illnesses more deeply.
My story is just one of many struggling with chronic Lyme disease. If it is not detected in the early stages of infection, it becomes more difficult to diagnose, and the long term effects are greater. I’d love to make this a conversation with you. If you have any questions about Lyme or my journey (as this is a brief overview), please ask them! Let’s talk!
